This is an HTML version of an attachment to the Freedom of Information request 'ME/CFS: how to manage this neurological disability'.



Our reference: FOI 24/25-0303 
GPO Box 700 
Canberra   ACT   2601 
1800 800 110 
13 June 2025 
 
ndis.gov.au 
 
 
Julie Keys 
 
By email:
 xxxxxxxxxxxxxxxxxxxxxxxxxx@xxxxxxxxxxx.xxx.xx  
 
 
 
Dear Julie Keys 
Freedom of Information request - Notification of Decision 
Thank you for your correspondence of 6 September 2024, in which you requested access 
under the Freedom of Information Act 1982 (FOI Act) to documents held by the National 
Disability Insurance Agency (NDIA). 
I apologise for the delay in processing your request. 
The purpose of this letter is to provide you with a decision on your request.  
Scope of your request  
You requested access to the following documents: 
“....I am seeking copies of correspondence/phone call logs, emails relating to how to 
manage ME/CFS between July 2023 to September 2024...” 

On 26 December 2024, you revised the scope of your request to the following:  
“…information/correspondence between the NDIA  and other parties (e.g. NDIA 
planners. the NDIA TAB. external advisors e.g. researchers, medical personal, allied 
health personal etc.) on how to manage ME/CFS that is dated/received/written  between 
July 2023 to 6 September 2024.” 

Internal Consultation  
Based on the revised scope, I initiated a search for documents within the following NDIA 
business areas:  
•  Policy and Practice Leadership  
At the conclusion of my searches, senior staff in the aforementioned business areas advised 
that the NDIA does not provide medical advice on ‘how to manage’ particular conditions. The 
business areas also highlighted that further specification, and limits are required for terms 
mentioned in your scope. 
 
 



Request Consultation  
On 5 May 2025, I sent you an email with a letter initiating a consultation process under 
section 24AB of the FOI Act. In my letter I advised you that I intended to refuse access to 
your request on the grounds that your request does not satisfy the requirement in section 
15(2)(b) of the FOI Act, which requires an FOI applicant to provide such information 
concerning the document/s they are seeking access to, to enable the Agency to be able to 
identify them. My letter, which I have attached separately from this decision notice, detailed 
the reasons for my view.  
To date, I have not received a response from you and have continued to process your 
request based on your original scope.  
Timeframe 
The FOI Act provides 30 calendar days for the processing of an FOI request after it is 
received. As your valid FOI request was received on 6 September 2024, the original due 
date for your FOI request was 7 October 2024. 
I acknowledge that this time has lapsed and as a result we are deemed to have refused your 
request under section 15AC of the FOI Act. The effect of this is that you do not have a right 
seek an internal review of my decision. However, I confirm that you retain your right to seek 
external review by the Office of the Australian Information Commissioner (OAIC).  
I note that despite this, I have continued processing your request and I extend my apologies 
for the delay in providing you with a decision on access   
Decision on access to documents 
Taking into consideration that you have not responded to the consultation process, I have 
decided to refuse your request pursuant to section 24(1)(b) of the FOI Act on the grounds 
that a practical refusal reason exists as per 24AA(1)(b). 
I made this decision as a delegated decision maker under section 23(1) of the FOI Act.  
Reasons for decision 
A detailed statement of reasons for my decision can be found at Attachment A. 
Rights of review 
Your rights to seek a review of my decision, or lodge a complaint, are set out at 
Attachment B

If you have any enquiries about this matter, please contact me by email at xxx@xxxx.xxx.xx. 
Yours sincerely 
 
 
Wendy (WNN633) 
Senior Freedom of Information Officer 
Information Release, Privacy and Legal Operations Branch 
Reviews and Information Release Division 
2 

link to page 3 Attachment A 
Statement of Reasons 
FOI Application 24/25-0303 
___________________________________________________________________ 
Practical refusal reason 
Relevant law – s24AA 
A practical refusal reason exists in relation to a request for documents if the request does 
not satisfy the requirement in paragraph 15(2)(b) (identification of documents)1. 
Upon receipt of your Freedom of Information request, I noted that further clarity was required 
from you regarding the scope of your request. On 11 November 2024, I emailed you to 
confirm the type of documents you were seeking for this request and sought your agreement 
to a proposed scope which would encompass the documents you were seeking.  
On 26 December 2024, you responded to my email and opted to revise the scope of your 
request to the following:  
“…information/correspondence between the NDIA  and other parties (e.g. NDIA 
planners. the NDIA TAB. external advisors e.g. researchers, medical personal, allied 
health personal etc.) on how to manage ME/CFS that is dated/received/written  between 
July 2023 to 6 September 2024.”
 
Request Consultation 
On 5 May 2025, I wrote to you advising that, based on the scope of your request and advice 
from senior staff within the Policy and Practice Leadership,  your request required further 
clarification. The scope was considered too broad to conduct effective document searches, 
and as such, a practical refusal reason was identified under the FOI Act. 
I also advised, in circumstances where an Agency is considering a practical refusal, it is 
required to undertake a request consultation process under section 24AB of the FOI Act. I 
invited you to do one of the following things within the 14-day consultation period.  
•  withdraw your request; 
•  make a revised request; or 
•  indicate that you do not wish to revise the request (in which case the current scope of 
your request will stand).  
 
During this period, I advised that you were welcome to seek assistance in revising your 
request, in a way that adequately addresses the practical refusal reason outlined above. 
I confirm, to date, I have not received a response from you during the consultation process, 
and I am satisfied that a practical refusal reason still exists. I therefore refuse your request 
on the basis of a ‘practical refusal reason’ under section 24(1)(b) of the FOI Act. 
 
1 24AA(1)(b) of the FOI Act. 
3 


 
Attachment B 
Your review rights  
As this matter was a deemed refusal, internal review of this decision is not an option. 
However, if you have concern with any aspect of this decision, please contact the NDIA FOI 
team by email xxx@xxxx.xxx.xx or by post: 
 
Freedom of Information Section 
Information Release, Privacy and Legal Operations Branch 
Reviews and Information Release Division 
National Disability Insurance Agency 
GPO Box 700 
CANBERRA ACT 2601 
 
Review by the Office of the Australian Information Commissioner 
The FOI Act gives you the right to apply to the Office of the Australian Information 
Commissioner (OAIC) to seek a review of this decision. 
 
If you wish to have the decision reviewed by the OAIC, you may apply for review within 60 
days of receiving this letter.  
 
You can apply to the OAIC for review in the following ways: 
 
Online: 
www.oaic.gov.au  
Post:  
GPO Box 5218, Sydney NSW 2001 
Email: 
xxxxxxxxx@xxxx.xxx.xx 
Phone: 
1300 363 992 (local call charge) 
 
Complaints to the Office of the Australian Information Commissioner or the 
Commonwealth Ombudsman 
You may complain to either the Commonwealth Ombudsman or the OAIC about actions the 
NDIA took in relation to your request. The Ombudsman will consult with the OAIC before 
investigating a complaint about the handling of an FOI request. 
 
You can make a complaint to the OAIC using the contact details identified above, or to the 
Ombudsman by: 
 
Phone: 
1300 362 072 (local call charge) 
Email:  
xxxxxxxxx@xxxxxxxxx.xxx.xx  
 
Your complaint should set out the grounds on which you consider the OAIC or the 
Ombudsman should investigate the NDIA’s handling of your FOI request.