This is an HTML version of an attachment to the Freedom of Information request 'ME/CFS - response to the NHMRC's 2019 recommendation to update the 2002 guidelines'.




 and 
 (NHMRC) [SEC=OFFICIAL]
 
Hi 
 
That would be terrific. I can do Thursday or Friday afternoon this week after 3pm.
 
Many thanks
 
 
___________________________________________________
Acting Director, Clinical Practice Guidelines
Research Quality and Advice
National Health and Medical Research Council
@nhmrc.gov.au
www.nhmrc.gov.au
I acknowledge the Traditional Custodians of the lands and waters around Australia and
pay my respects to Elders past and present.
 
 
From: 
@ndiscommission.gov.au> 
Sent: Tuesday, 26 November 2024 12:34 PM
To: 
@nhmrc.gov.au>
Subject: RE: Introduction: 
 (NDIS Quality and Safety Commission) meet 
 and 
(NHMRC) [SEC=OFFICIAL]
 
Hi 
 
Apologies for taking so long to get back to you.
 
Would you be available for a call this week.  I generally have availability after 3pm?
 
Regards
 
From: 
@nhmrc.gov.au> 
Sent: Tuesday, 19 November 2024 5:30 PM
To: 
@ndiscommission.gov.au>


Subject: RE: Introduction: 
 (NDIS Quality and Safety Commission) meet 
 and 
 (NHMRC) [SEC=OFFICIAL]
 
Thanks 
 
Happy to chat over the phone if that’s helpful.
 
Kind regards
 
___________________________________________________
Acting Director, Clinical Practice Guidelines
Research Quality and Advice
National Health and Medical Research Council
@nhmrc.gov.au
www.nhmrc.gov.au
I acknowledge the Traditional Custodians of the lands and waters around Australia and
pay my respects to Elders past and present.
 
 
From: 
@ndiscommission.gov.au> 
Sent: Friday, 15 November 2024 5:46 PM
To: 
@nhmrc.gov.au>
Subject: RE: Introduction: 
(NDIS Quality and Safety Commission) meet 
 and 
 (NHMRC) [SEC=OFFICIAL]
 
Hi 
 
 
I will chat to NDIA colleagues re: who can best help with your queries and get back to you ASAP.
 
Regards
 
From: 
@nhmrc.gov.au> 
Sent: Friday, 15 November 2024 12:20 PM
To: 
@ndiscommission.gov.au>


Subject: RE: Introduction: 
 (NDIS Quality and Safety Commission) meet 
 and 
 (NHMRC) [SEC=OFFICIAL]
 
Hi 
 
 
I was also hoping I could explore a few questions with you about who to speak with at NDIA re
Chronic Fatigue Syndrome (ME/CFS). I’ve been searching around for a little while now to find
someone who has familiarity with developing the criteria for access to NDIS for ME/CFS patients.
We are developing a new national guideline and as part of this we have been made aware of
patient concerns regarding graded exercise therapy.
 
We have a few questions for our understanding on the process and are curious to know more so
that we can develop new guidance that is useful for all. It would be helpful to understand what
sort of information NDIA use to set access criteria.
I would be most grateful if you can connect me with someone who can help in that regard if you
have any leads.
 
Thanks so much
 
___________________________________________________
Acting Director, Clinical Practice Guidelines
Research Quality and Advice
National Health and Medical Research Council
@nhmrc.gov.au
www.nhmrc.gov.au
I acknowledge the Traditional Custodians of the lands and waters around Australia and
pay my respects to Elders past and present.