Health care for children with myalgic encephalomyelitis
Mark Joradan made this Right to Information request to Children's Health Queensland Hospital and Health Board
Response to this request is long overdue. By law, under all circumstances, Children's Health Queensland Hospital and Health Board should have responded by now (details). You can complain by requesting an internal review.
From: Mark Joradan
Dear Children's Health Queensland Hospital and Health Board,
The National Centre for Neuroimmune and Emerging Diseases at Griffith Univeristy had a clinic for Myalgic Encephalomyelitis (ME) patients under the guidance of Prof, Don Staines, that worked in conjuction with allied health workers specialising in best practice management practices for children and adults with ME.
1. Provide a list of specialists who now see children with ME.
3. Records on the number of Queensland Children with ME.
4..Record of the number of health services (home cleaining, transport) provided for children with ME.