Prader-Willi syndrome
Dear National Disability Insurance Agency,
Please provide all documents, research papers, disability snapshot document and assessment tools that mention or relate to Prader-Willi syndrome.
Yours faithfully,
Tessa Kelton
Thank you for your email to the National Disability Insurance Agency
(NDIA) Freedom of Information (FOI) team.
Please note: due to a high volume of requests, our ability to respond to
you in a timely manner may be affected. We will action your request as
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of time. We appreciate your understanding if this is required.
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email at [9][email address] or via webchat at [10]ndis.gov.au.
Alternatively, you can also contact us by phoning 1800 800 110.
Kind regards
Freedom of Information Team
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [11][NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
References
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mailto:[NDIA request email]
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mailto:[email address]
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11. mailto:[NDIA request email]
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your request for information on 25 November 2025, and I’m
sorry it’s taken so long to process your request.
Searches have shown that only one document relating to Prader-Willi
syndrome, which is from our disability snapshot library.
This document has already previously been released via FOI and so is
publicly available via the Disclosure Log.
As there are no further documents available, please advice if you would
like to withdraw your request.
Please find attached a copy of this document. If you need this in a
different format, please let me know.
Please contact us at [1][NDIA request email] if you have any questions or
require help.
Thank you.
Kind regards
Cindy
Cindy – CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [2][NDIA request email]
[3]NDIA logo
[4]LGBTIQA+ rainbow graphic
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
[5]Aboriginal and Torres Strait Islander flags graphic
Dear Kerry Mulhall
I am writing to finalise this matter, which we now consider closed.
A document from our Disclosure Log was provided to you on 10 March 2025,
and I believe this documents fulfills your scope in full. No other
documents were found.
If you do need further information or documents, please get in touch
again.
I have also attached your review rights, if you wish to request a review.
Thanks and regards
Cindy
Cindy – CGN062
Senior Freedom of Information Officer
Information Release, Privacy and Legal Operations Branch
Reviews and Information Release Division
National Disability Insurance Agency
E [1][NDIA request email]
[2]NDIA logo
[3]LGBTIQA+ rainbow graphic
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
[4]Aboriginal and Torres Strait Islander flags graphic
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
From: foi <[NDIA request email]>
Sent: Monday, 10 March 2025 3:19 PM
To: [FOI #12375 email]
Cc: foi <[NDIA request email]>
Subject: FOI 24/25-1216 – Your request for information - Documents from
Disclosure Log [SEC=OFFICIAL]
Dear Tessa Kelton
Thank you for your request for information on 25 November 2025, and I’m
sorry it’s taken so long to process your request.
Searches have shown that only one document relating to Prader-Willi
syndrome, which is from our disability snapshot library.
This document has already previously been released via FOI and so is
publicly available via the Disclosure Log.
As there are no further documents available, please advice if you would
like to withdraw your request.
Please find attached a copy of this document. If you need this in a
different format, please let me know.
Please contact us at [5][NDIA request email] if you have any questions or
require help.
Thank you.
Kind regards
Cindy
Cindy – CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [6][NDIA request email]
[7]NDIA logo
[8]LGBTIQA+ rainbow graphic
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
[9]Aboriginal and Torres Strait Islander flags graphic
foi would like to recall the message, “FOI 24/25-1216 – Notice of Decision”.
********************************************************************** IMPORTANT: This e-mail is for the use of the intended recipient only and may contain information that is confidential, commercially valuable and/or subject to legal or parliamentary privilege. If you are not the intended recipient you are notified that any review, re-transmission, disclosure, dissemination or other use of, or taking of any action in reliance upon, this information is prohibited and may result in severe penalties. If you have received this e-mail in error please notify the sender immediately and delete all electronic and hard copies of this transmission together with any attachments. Please consider the environment before printing this e-mail **********************************************************************
Dear Tessa Kelton
I am writing to finalise this matter, which we now consider closed.
A document from our Disclosure Log was provided to you on 10 March 2025,
and I believe this documents fulfills your scope in full. No other
documents were found.
If you do need further information or documents, please get in touch
again.
I have also attached your review rights, if you wish to request a review.
Thanks and regards
Cindy
Cindy – CGN062
Senior Freedom of Information Officer
Information Release, Privacy and Legal Operations Branch
Reviews and Information Release Division
National Disability Insurance Agency
E [1][NDIA request email]
[2]NDIA logo
[3]LGBTIQA+ rainbow graphic
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
[4]Aboriginal and Torres Strait Islander flags graphic
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
From: foi <[NDIA request email]>
Sent: Monday, 10 March 2025 3:19 PM
To: [FOI #12375 email]
Cc: foi <[NDIA request email]>
Subject: FOI 24/25-1216 – Your request for information - Documents from
Disclosure Log [SEC=OFFICIAL]
Dear Tessa Kelton
Thank you for your request for information on 25 November 2025, and I’m
sorry it’s taken so long to process your request.
Searches have shown that only one document relating to Prader-Willi
syndrome, which is from our disability snapshot library.
This document has already previously been released via FOI and so is
publicly available via the Disclosure Log.
As there are no further documents available, please advice if you would
like to withdraw your request.
Please find attached a copy of this document. If you need this in a
different format, please let me know.
Please contact us at [5][NDIA request email] if you have any questions or
require help.
Thank you.
Kind regards
Cindy
Cindy – CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [6][NDIA request email]
[7]NDIA logo
[8]LGBTIQA+ rainbow graphic
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
[9]Aboriginal and Torres Strait Islander flags graphic
Emily Lacey left an annotation ()
Hi Tessa - You can find the Prader-Willi Syndrome "Disability Snapshot" here, it's DOCUMENT 18 and starts on page 234: https://www.righttoknow.org.au/request/a...