Technical Advisory Branch (TAB) "Research Requests" for Acquired Brain Injury, MS, CIS, Chiari, Syringomyelia, Narcolepsy, Idiopathic Hypersomnia, and ME/CFS.
Dear National Disability Insurance Agency,
I am requesting access under the Freedom of Information Act 1982 (FOI Act), to the following information:
[ START SCOPE OF REQUEST ]
The Technical Advisory Branch compiles research on particular diagnoses. This type of document has been released previously as a part of FOI 23/24-0467 and FOI 21/22-1232. I am looking for those sort of documents regarding the following conditions:
1. Acquired Brain Injury
2. Multiple Sclerosis (MS)
3. Clinically Isolated Syndrome (CIS)
4. Chiari Malformation (also known as Arnold-Chiari malformation)
5. Syringomyelia (also known as a Syrinx)
6. Narcolepsy (Type 1 and Type 2)
7. Idiopathic Hypersomnia
8. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
[ END SCOPE OF REQUEST ]
INFORMATION TO CLARIFY AND AID YOUR SEARCH:
From my understanding, these documents are written by TAB staff and most often titled “Research - *insert name of condition*” or “Research Request - *insert name of condition*”, although I ask you to please provide any document that fits the general description of a research report on the conditions I have listed, regardless of it’s exact title.
Please be sure to communicate this to the TAB in your search, and provide the documents released under FOI 23/24-0467 and FOI 21/22-1232 for their reference.
I look forward to your response.
Kind regards,
Emily Lacey
Thank you for your email to the National Disability Insurance Agency
(NDIA) Freedom of Information (FOI) team.
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Kind regards
Freedom of Information Team
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [11][NDIA request email]
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mailto:[NDIA request email]
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9. mailto:[email address]
mailto:[email address]
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11. mailto:[NDIA request email]
Dear National Disability Insurance Agency,
I am conscious that this request was made 14 days ago now and that you only have a legislated 30 days to provide a decision or to request an extension of time.
Please respond.
Kind regards,
Emily Lacey
Dear National Disability Insurance Agency,
I am conscious that this request was made 22 days ago now and that you only have a legislated 30 days to provide a decision or to request an extension of time.
Please respond.
Kind regards,
Emily Lacey
Dear Emily Lacey
Freedom of Information Request: Acknowledgement
Thank you for your request of 5 March 2024, made under the Freedom of
Information Act 1982 (FOI Act), for copies of documents held by the
National Disability Insurance Agency (NDIA).
Unless you advise otherwise, we will take it that you agree to the names
and contact details of NDIA staff being excluded from the scope of your
request (that is, the information will be treated as irrelevant).
Processing timeframes
We’re sorry it is taking us longer than expected to process your request.
We are therefore writing to seek your agreement to a 30-day extension of
time under section 15AA of the FOI Act. If you agree to this extension,
the new due date for us to make a decision on your request will be 4 May
2024.
Please let us know whether you agree by 2 April 2024.
If you don’t agree, we may need to seek an extension of time from the
Office of the Australian Information Commissioner.
Further help
Please contact us at [1][NDIA request email] if you have any questions or need
help.
We will contact you using the email address you provided. Please advise if
you would prefer us to use an alternative means of contact.
Nick
Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E: [2][NDIA request email]
[3]Title: NDIS delivered by the National Disability Insurance Agency
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
[4]Aboriginal and Torres Strait Islander flags graphic
Dear foi,
I am writing to ask for an update on my request for the TAB research documents. Is it expected that you will be able to return a decision within the 30 day extension (due 04/05/24) that I have agreed to?
Kind regards,
Emily Lacey
Dear foi,
I am concerned you are not going to deliver a decision or request a further extension of time before the 04/05/2024 deadline which has been provided by the previous 30 day extension. I understand you are aware doing so would effect my rights to internal review. Please respond.
A full history of my FOI request "Technical Advisory Branch (TAB) "Research Requests" for Acquired Brain Injury, MS, CIS, Chiari, Syringomyelia, Narcolepsy, Idiopathic Hypersomnia, and ME/CFS." and all correspondence is available on the Internet at this address: https://www.righttoknow.org.au/request/t...
Kind regards,
Emily Lacey